Veteran Health Data Survey

The Department of Veterans Affairs is a serial offender of violating privacy laws designed to protect veteran protected health information.

Each year, VA is caught violating common standards designed to protect patient records and private information. Compounding this, VA regularly provides access to patient records for research purposes to private industry. Private industry then profits off the research.

Most recently, I have highlighted the example of Flow Health Inc, a for-profit company desperate to access veteran genomic data from the Million Veteran Project. Even after being denied access last December by now Secretary David Shulkin, Flow Health hired a lobbying firm run by Trump campaign leader Corey Lewandowski.

Flow Health Inc Examples

Lewandowski recently founded a lobbying firm Avenue Strategies. The lobbying firm has hired at least two other Trump operatives. Its only customer to date is none other than Flow Health Inc., a medical research company operating in San Francisco, California, but not registered in the state.

How is that for draining the swamp?

VA Health Data Survey

wilken jones

information received appreciation

ANutterVet

@wilken jones – Write a better post, you’ve got it in you.

Rick Lipary
I have the perspective of a former V.A. employee AND a V.A. patient. Veterans have ZERO privacy within the V.A.! I am 100% service connected, and even WE have to sign off on at least 20 parties that are allowed to access even our most sensitive medical records data. In the same physical and electronic forms, it states that once we give permission to these many parties, they then have carte blanche to assign rights to anyone they choose! Translated,… Read more »
Mr. James Franklin Moore, Sr.
I’ve had them at the Manhattan RO, and called S.U.N.Y. College at Old Westbury, and told/warned they about me and my back ground in civilian life which had nothing too do with my military career in any form… Then there was those people at Womack Hospital, on Fort Bragg. Denied my permission for dental implants at said hospital but, {stating that we don’t do out source veterans too this hospital dental for treatment of any kind}, but they turned around… Read more »
james gallegos
write a letter to the secretary of veterans affairs and send a copy to the senate committee chairman in Washington. Veterans must let these two entities know how each of us are being treated or mistreated. We must never stop trying to help ourselves, other veterans and those becoming veterans. VA employee’s must be held accountable and they can not fix something they know nothing about, letters from us. Name names of employees who have harmed us in one way… Read more »
Craig Womer

Why would you expect anything different. Looks like the no’ s win again

Robert Snyder
To the best of my knowledge, the VA doesn’t conduct any research on it’s own. They rely on other government agencies (CDC, etc.) and private industry. As far as I’m concerned, as long as no personal information is disclosed along with the data and veterans health care is improved by the results of this sharing of data – in other words, we profit from it as well – I don’t see where any conflict is indicated. Health Care is a… Read more »
Don Avant

Hi Robert…Guess you never heard of the Genome project? How about the VA doctor that developed a Hepatitis vaccine on VA time using VA faciities and then sold it to a pharmaceutical company for millions and the VA received no compensation…Then the pharm co. sold the vaccine back to the VA for use on Vets at a HUGE price…

JAMES ALLEN SMITH
james says i am looking at the last check they wrote me for my blood test THE check is from HOUSTON VA RESEARCH AND EDUCATION, INC. FOR TEN DOLLARS A years worth of blood test I got 50 dollars but that is fifty dollars more than I got for the other test I ” volunteered for “. ONE good thing that hep c medicine they were testing works ..IT WORKS real well this post to be continued when I quite… Read more »
james gallegos

don, wanted to ask you how you feel about veterans assembling in Washington by the thousands to express our concerns. How can we go about getting the word out and who could be our speaker. I believe many veterans on this site, your site would volunteer to assist with phone calls or what ever needs to be done.

cj

@james gallegos: I am with you if we ever get this organized. I am sorry I don’t have the capacity to organize something like this. I can however be there.

james gallegos

Many of us are in your same shoes. I just think it strange that Veterans are not doing this. It seems we are the only group that has not come forward and expressed our concerns to the whole nation. I just don’t understand that we can join to fight in wars, but will not stand up for ourselves or others.

The squeaky wheel gets the grease, they say.

Dennis

Robert,

Can you define what “personal information” means, if your complete genetic makeup does not fall into that category?

namnibor

@Robert Snyder: DNA is not just for Jurassic Jumbo Theme Parks anymore. Silly Rabbit.

ANutterVet

@Robert Snyder – You’re naïve Brother, don’t be fooled by your caring and loving VA. For your own health and welfare, wake up Veteran.

namnibor

“The sleeper awakens!” — ‘Dune’, Frank Herbert

ANutterVet

@Namnibor – How you been Nam?

Disgruntled Veteran
Robert, First time you have read posts and comments here? If so, Welcome Aboard. Hang around, these good folks will increase your knowledge tremendously. If not – – – then you are either a TROLL or living under a ROCK! FIX THE BROKEN VA: 1. Fire all the Lazy No Good Workers. Fire EVERY single AFGE/SES Employee. 2. Sell off all the VA facilities. 3. Issue all veterans a card that allows them to choose their own doctors that they… Read more »
ANutterVet

@Robert Snyder – I forgot to mention, if you’re a true Brother, a love one of a Veteran, or friend, or caregiver, or you’re truly interested in Veteran issues, then welcome aboard. If not, then leave. I don’t have to mention Politicians too much, they hardly come on board to even say hello, and try to get to know us, the Misfits.

james gallegos
These people write all sorts of crap about veterans, True or not, there are so many involved they don’t review the chart for information or if they do they put their own two cents or add what they want. Changing one word, makes a hell of a lot of difference. They will not make any corrections. It takes an Act of Congress and they won’t help either, so the VA can say anything they want to about how they feel… Read more »
Lem

No

Howard Potash
This is from US Rep Phil Roe MD..TN. Congressman Phil Roe, M.D. – Representing the 1st District of Tennessee Website | About Phil | First District | Constituent Services | Newsroom | Issues | Legislation | Contact Me Addressing Veterans Crisis Line Shortcomings When a man or woman in our armed forces takes their oath to support and defend the Constitution of our country, our country in turn makes a promise to them, first made by President Lincoln, to take… Read more »
Lem
Howard, it is not just the lack of a “call center responsiveness”. From personal experience I can tell you the biggest problem is not being able to get a lock up, neurobehavioral ward bed when you need one. That is not the problem of the contractor at the call center. That is the lack of responsiveness by the VA Medical Centers. And that deficiency is the greater problem. Not having a place to refer the crisis patient. Perhaps too much… Read more »
james gallegos
The VA senate veterans committee is very interesting to watch and informative. The problem seems to be that the VA mind set is to evade answering the committee’s questions directly and honestly. I believe that the top VA officials are pre counseled by VA Attorneys. Say as little as possible, be evasive and do not blame any certain person or employee or plead the 5th. Miller was a very good chairman and would not take any crap from them and… Read more »
John

need help

Frederick L. Payne
The VA Is For The VA! If ever there was a case to bring Racketeer Influenced and Corrupt Organizations law (RICO) charges against a organizations Leadership it would be the Senior Executive Service (SES) and the General Schedule 15’s that manage the Department of Veteran Affairs. Notice I did not say the appointed Politicians, they end up being corrupted by the SES and 15’s in the course of their appointments. The second case for RICO would be the Union Officials… Read more »
Windguy
Great poll. We’re either awfully jaded, or right .. or both. A couple of the questions should have a “conditional” option. I’d actually be OK with someone using this large of a database. Especially at the genomic level. However, not without my permission, which, I would only give if I knew the purpose of the research – and I had access to the results. Or, if I or other researchers could use the data as well, just in case we… Read more »
Bill
We all ready know we have been poisoned, I look at my wife in the terrible state she is in and and I know they poisoned her to. She is Okinawian oh but wait OA was never on the island i just cant figure out how the c123s were loaded with AO heading to NAM at Kadena Air Base without AO ever being on Okinawa? I know this is military intelligence at it’s finest but I cannot understand how our… Read more »
don

NO!

ANutterVet
Wow! What a joke. Better health care by sharing Veterans private healthcare information? I’m not sold on this matter. Why? I can’t even get medication that gives me relief. Why? The VA Pharmaceutical Comptroller or whom ever purchases medication for the VA’s Pharmaceutical Formulary, contracts with companies that sell cheap generics that don’t provide pain relief. In other words, Veterans deserve Brand Name medications when Generics don’t work. I’ve been continually informing my PCP that I need a Brand Name… Read more »
Jane
Totally agree with the “new packaging” of the 5% Lidocaine patches they do not work anymore smaller thickness eat but sadly do not stick like they should or have in the past this is Mylan Company responsible for this! With the VA selling or not properly taking care of my DNA by the MVP no way will I do it intianally that does not mean the VA will take our blood when doing blood test and have some go that… Read more »
ANutterVet

@Jane – I even tried using a little ingenuity, by taking some one sided clear adhesive tape provided by the VA. I put the patch on, then added the tape, and my body heat warmed up the adhesive material on the tape, therefore, causing the tape not to stick. My, my, can’t win for nothing. This is why I stated that the VA’s Quality Control is lacking. What a joke. Not funny, it still hurts.

ANutterVet
@Jane – I forgot to mention, that I shared with a Private Sector Nurse about the 5% Lidocaine Patch not sticking. The Nurse retired from the VA, and the spouse was a Veteran as well. Because of financial issues, the spouse receives medical care from the VA too. After I told the Nurse about the patch, the Nurse was kind enough to drop off a patch that not only sticks to my skin, but it also works. The Pharmaceutical Company… Read more »
Jane
I have used the Lidocaine ointment USP 5%, have the VA provide the latix/plastic gloves to properly help put the Lidocaine onitment on especially in places where the Lidocaine Patches will not work properly! I too have used the adhesive tape no go falls off especially when twist or turning picking things up cleaning the house or when sweating nothing like say play softball or other sports LOL. txs @ANutterVet on patches that still stay on! doubt my VA will… Read more »
Crazy elf

Or, how about the (alleged) medications VHA’s use which are STILL in the “testing stages”!

My answer to Ben’s Question is a resounding – “FUCK NO!”

Dennis
I think for me that good spiritual health is pretty simple. For me it means that when I am alone and completely square with myself about things that I “believe” I either do have all the answers I really need to get by in the world and continue existing, or I do not. I have oft stated a firm belief that it is the spiritual health of veterans that leads us into destruction, despair, and grief, because I don’t think… Read more »
Rick Lipary

No Veteran’s Crisis Line Shall Go Unanswered Act!? MORE word games. Most will get something cold, impersonal, lacking in feelings, mercy, and compassion, and with no knowledge.The others will get recordings and robo responses!

Disgruntled Veteran
Last time I called the VCL, I got the ROBO – – – said they would call back. They did. Three months later. Since I have seen how seriously they take things – – – next time I am “in crisis” – – – who the fuck knows? One thing I do know – – – I will not be calling their number. Thank goodness for my Vet Friends on this Board. @ANutterVet – – – Last time we spoke… Read more »
ANutterVet

@Disgruntled Veteran – Anytime you wanna talk, you call. In emergency distress, you call at any time, I don’t care what time that it is. If its early in the morning when you call, I may take a few minutes to wake up, but I’ll be there for you Bruddah.

cj

@Disgruntled Veteran: DV, same goes for me, you call anytime you wish, I don’t care what time it is. I will get my number to you.

Disgruntled Veteran
@ANutterVet @cj – – – Same policy applies to you. ANutter, already got you programmed into my phone. As you know, I do not answer calls unless I know who I will be speaking with first. Voicemail takes care of that. I never give a rip about the time as well. Would ALWAYS prefer to lose a bit of sleep, than lose a brother or sister. And I may be a bit grouchy until I get that first BIG SLUG… Read more »
ANutterVet

@DV – @cj and I already have this agreement. In this manner, we can have someone available in different Time Zones. I mean it, at any time if and when things get a bit ruff, you Brothers, please, don’t ever hesitate in calling me. Wife agrees, so no shame.

Disgruntled Veteran

@ANutterVet – – – I will not hesitate.

ANutterVet

@DV @cj – Hopefully we won’t have to call due to a bad day or night, but its quite comforting knowing that there isn’t a possibility of getting a ROBO answer like the VA, ass wipes.

namnibor

Survey Says: Hell NO to FLOW HELLTH.

Weasel ass rat bastards!

What OTHER backroom deals took place in that awkward timeframe in which McDonald thought he was remaining and the week after that?
Was that when the Caligula like orgy took place with Veteran’s again in the sacrificial blood?

NavInfPO6
Ben. I thoroughly read every post that I receive. For the most part, I also thoroughly understand what it is you are writing about and totally agree with your views. Just when I feel things cannot get any worse, you then post something that is worse. I have to present this question to you, knowing full well it may be a question that you cannot answer. If so, I understand. With everything you have presented to us veterans and all… Read more »
namnibor
One more question: How many that voted yes are familiar with or at least watched in-depth close-up documentaries on the efficiency of a meatpacking plant? Like cattle to slaughter, any of us are, if we don’t question authority. The question is basically always the same when it’s the VA: Really? What The Fuck, VA?!!!!!!!!!!!!! RAND Corp. concurs with the ‘What The Fuck?’, as those are the words every new lab assistant exclaims when they see what they have used Veteran… Read more »
Lily

The government will use vets health information to harm them more. Next thing you know vets will be chipped like animals. They will be say it’s to help us but it will be to harm us. You will get a reduction letter from the VA that says “You’re GPS chip shows you were slouching all year while watching TV so your back must be better. We’re reducing you from 60% to 20%”.

Jo3n

How can anyone trust the VA to get anything done right? It’s not in the AFGE’s interest. The administration is too busy coming up with ways to con Congress, and spending another twenty five million on keeping the taxpayers ignorant. I’m about done with the VA.

Raventaz

Jo3n,
You said it all!!! Congress needs to get their act together and move the Veterans Administration under the military where it belongs.

Rick Lipary
Are you^^^^ SERIOUS!? Military or government is exactly the same, because they are allied and part of the same veteran hating monster! Give us medical vouchers, and let us go anywhere we want! Fuck those filthy ass and super corrupt unions, and the same goes for the V.A.! If they can spend trillions yearly fighting unjustified wars all over the planet, they can EASILY afford the roughly 100 billion yearly that it would cost to let every veteran in the… Read more »
cj

@Rick Lipary: Thank you, another Veteran NOT blinded by the corupt military. LIke they have accountability for ANYTHING is laughable at best. I agree with you 100%

Disgruntled Veteran

@Rick Lipary – – – Precisely.

Cantigny
@Ben, decent survey but we all knew what the results would be from the veteran community. i’m curious since it was brought up about special interests benefiting those particular powerful interests listed, which by the way, i don’t see any pro(tect)-veteran special interests joining the lobbying parties to protect veterans… the curiosity is this: are there any M.E. pharms co’s that have contracts with VA benefiting on the backs/suffering of American mil personnel? you know, these current perpetual “wars” that… Read more »
cj

If I said it Once, I’ve said it a Googolplexian times, no. That’s a bigly amount of times.

Dennis

“Bigly” is an extremely relative number cj. A great number of my relatives are generally assigned that label. Weebles wobble and they don’t fall down and neither do my cousins, aunt, and uncles all up in North Idaho!

Meanwhile…later tonight, heard from outside my room; “Put down the rifle Cousin Joe! It’s just a damn joke!”….

cj

@Dennis. This is my new word phrase, as it was used upon me by a VA higher up. “I concur”
Just wondering also, do you have a place to let those pups of yours run? They gotta be a sight to see.

Disgruntled Veteran

@CJ – – – Love it! Have not seen that word used in any comment before! Although, we do use it routinely in some math challenges I am involved with.

It is a 1 followed by one-hundred zeros prior to the decimal point. Also known as “ShitloadAZeros”.

cj

@Disgruntled Veteran: LOL, “it is a one followed by 100 Zero’s” That sound just like the employee line at the VA showing up for work in the morning. No offense to the number 1 or o. Plenty of offense to the VA employees.

Dennis

The only number that I can really envision like that is the square root of negative one. Why, just the other day, as I was finalizing the normalization of the second quadratic equation needed to bake my chocolate cake, I realized that if I apllied the square root of negative one, that the cake would turn out fluffy.

…and the naysayers in class said we would never use that kind of math in practical matters! Pshaw!

Disgruntled Veteran

@Dennis – – – (Light slap on your arm as I drop to my knees holding my guts as I laugh my fool head off) – – – Cake? I always figured you more as the type to bake a Pi. 3.14 of them.

Semper Fi.

ANutterVet

@cj @DV @Dennis – While in college, I was always liked the number 10-81 power = sexvigintillion. I donno why, I guess it had a ring to it or something. I had an Executive Director in a place of employment whom many employees use to call Virginer instead of Virginia. Wait, is there any correlation here?

ANutterVet

@DV – OK smartie, here you go, 3.14159
265358979323846264338327950288419716939937510582097494459230781640628620899862803482534211706798214808651328230664709384460955058223172535940812848111745028410270193852110555964462294895493038196442881097566593344612847564823378678316527120190914564856692346034861045432664821339360726024914127372458700660631558817488152092096282925409171536436789259036001133053054882046652138414695194151160943305727036575959195309218611738193261179310511854807446237996274956735188575272489122793818301194912983367336244065664308602139494639522473719070217986094370277053921717629317675238467481846766940513200056812714526356082778577134275778960917363717872146844090122495343014654958537105079227968925892354201995611212902196086403441815981362977477130996051870721134999999837297804995105973173281609631859502445945534690830264252230825334468503526193118817101000313783875288658753320838142061717766914730359825349042875546873115956286388235378759375195778185778053217122680661300192787661119590921642019, phew that’s all I can remember, my head is clogged up from a sinus congestion. LOL

Disgruntled Veteran

@cj – – – Now THAT is funny. Always thought of Googolplex as just a number, never quite equated it to VA employees. Now you just KNOW who I’ll be thinking of whenever I have to go to the VA, and see them either shuffling in (slowly) to go to work – – or exiting (BuffarillaTunaBeast Herd Stampede) at quitting time.

Disgruntled Veteran

@ANutterVet – – – Not bad for a mucous-filled head. You only misplaced one 7. Wanna hint? Two digits away from being a 7-11. LOL!

ANutterVet

@Disgruntled Veteran – You wun funny bugga! Like me, I went and reviewed the numbers. Then went back to your post and caught it. Laughing at self.

Disgruntled Veteran

@ANutterVet – – – Thought you might like that. (Chuckle)

Dave Govro
As both a military retiree and disabled veteran; having also grown up as a military dependent, now using the military for my primary healthcare my entire life. The BEST way to sum all of this up from other perspectives, the way I see it is by ALL comparison it would be unconstitutional if not outright illegal to do this to any military dependents and/or retirees or any civilian/anyone using this system for their healthcare without giving any legal consent under… Read more »
Lily
I’m going to the vet center so the VAMC can’t see my therapy records. Right now I’m suspicious of my new counselor. During our first appointment he said “we here at the vet center are trying to get vets off disability “. I told him I have a hard time working as a security guard because I need frequent unauthorized breaks at random times to do yoga breathing to handle my stress. Now he’s trying to push me into voc… Read more »
Jo3n

@Lily, you have every reason to be aware. Not paranoid. Totally sounds like something the VA would do. If you fail at rehab, it’s ok.

ANutterVet

@cj @DV are u’s online?

cj

@ANutterVet” I am here, also surfing. Not typing much, my fingers not moving so great today.

cj

@ANutterVet: Nutter, I keep nodding off. Will catch you guys tomorrow. Been a long day. goodnight.

Disgruntled Veteran

@ANutterVet – – – Here and Surfing. Answering posts from e-mail feed.

ANutterVet

@DV – I just missed you, I traveled above to see other posts before seeing your comment.

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